These are on line support groups, where a large number of people with brain cancer, or parents of children with brain cancer share information on treatment, side effects, emotional, educational needs and more. Go to www.yahoogroups.com and search for the following groups. Follow
" Pediatric Brain Tumors (over 1,200 members)
" Brain Tumor Treatments (over 2,000 members)
" Educating BTBrain Kids ( lots of ideas about school and education issues)
A private Facebook Page of people touched by Gliomatosis Cerebri
Send a message to AYJ Fund on Facebook if interested in joining or Kathy@AYJFund.org
American Brain Tumor Association ( ABTA )
www.alexslemonade.org - An online or printed treatment journal to help keep track of all the information. Definitely worth checking out.
www.childrensoncologygroup.org/media/COG_Family_Handbook.pdf - A very complete Family Handbook written by the Children's Oncology Group, the world's largest organization devoted exclusively to childhood and adolescent cancer research.