The prognosis for gliomatosis cerebri remains poor.
You may see statistics about survival. Statistics are based on previous known cases. Clinical Trials and other experimental therapies are now available at the best pediatric cancer centers for high grade gliomas, and we are now excited that research has been started on this very rare disease. Clinical Trials and experimental therapies now provide more hope for extending life and someday finding a cure for gliomatosis cerebri.
Personal note - As someone said to me, the only thing that is important is how your child does, and that statistic is either 0 or 100%. We always believed that someone had be the one who was the 100%, and why shouldn't that be you.