Gliomatosis Cerebri International Conferences
When we started our journey, not only had we never heard of Gliomatosis Cerebri (GC), but also could not find anyone else who had been diagnosed with this type of cancer. As many do, we reached out to the internet and eventually social media. What we found was that information was very limited. At the time of Anna's diagnosis, there was no research being done, and no established community of GC families.
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We are pleased to share that this has now changed. We reached out to other GC families, and once connected we felt the need to do more. We helped connect the GC family community with interested physician specialists who collaborated in holding the first International Gliomatosis Cerebri Conference in March 2015 at the Curie Institute in Paris. The GC family foundations from the US, France and Spain sponsored this groundbreaking conference.
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A second GC International Conference was held at the National Institutes of Health in Bethesda MD, just outside of Washington D.C., US.
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Our next conference in 2019 was held in Barcelona, Spain. this conference once again connected leading international physician specialists and PhD researchers. This conference was again sponsored by GC family foundations, including the AYJ Fund. This conference led to a collaborative grant process and a $300,000 grant, funded by GC family foundations including the AYJ Fund, was awarded to an international team of researchers. This collaborative research project was led by Chris Jones PhD at the Institute of Cancer Research (ICR) outside of London, and included Mariella Filbin MD PhD at Dana-Farber Cancer Institute, Mara Vinci of Rome and David Castel of Paris.
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​Following a delay due to COVID, our last GC International Conference was held at Weill Cornell Medicine in NYC hosted by Jeff Greenfield MD PhD. Research presentations included new GC discoveries for the first time. A very exciting conference.
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​AYJ Fund is committed to funding research to find effective and less toxic treatments for children with gliomatosis cerebri (GC) and other brain cancers.
GC Global
Our GC Foundation Partners
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Elizabeth's Hope
Joshua Bembo Project
Franck, un rayon de soleil
http://franck-unrayondesoleil.com
Izas, la princesa guisante
http://izaslaprincesaguisante.org/en
Rudy A Menon Foundation
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Fey y Misericordia
Anne un rayon de soleil
Mathys un rayon de soleil
The GC Connection
Our GC Global Community has created a private Facebook group to share information about our children and adult members of our families diagnosed with GC. This provides a safe space for families to learn from each other, share struggles and strategies, and so much more.
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Contact me for more information on this private Facebook group.
GC Global - Gliomatosis Cerebri
The GC Global -GliomatosisCerebri Facebiij Page is a public Facebook page created for global awareness and with the aim to share up-to-date information with regards to medical development on the quest for finding the cure to gliomatosis cerebri.